Monday, September 1, 2008

MYCOSIS FUNGOIDES

An update on my wife, as I have said before she has cutaneous T-cell lymphoma, also known as mycosis fungoides. We have had conflicting opinions from different doctors. Her dermatologist sent her to the oncologist who did the pet scan and blood work, both of which came back negative. Which means that the cancer has not gone into her body but has stayed on her skin, good news. He sent her back to the dermatologist to be treated, the dermatologist didn't know why she was being sent back to him when the oncologist should treat this.
In the meantime, my wife went to Colorado to help her sisters clean out their dads house who passed away 3 years ago. While visiting their dads cousin they got to meet his daughter who just happens to be a doctor, a dermatologist and president of the National Dermatologist Association. Her cousin, Dr. Lynn Drake, told her what she had and what to do and where to go for the best treatment, Denver. They have a Mycosis Fungoides clinic there, the best.
Becky's oncologist acted like this was no big deal and said he would most likely never see her again, her dermatologist took it mush more serious and her cousin said get it treated now. I think we will listen to her cousin.
So now we are trying to get her into this MF clinic and trying to get her insurance to allow her to go out of network for treatment.
So keep praying for us, God answers prayers, He already has. Just think, Becky goes to clean her dad's house out and ends up talking to her cousin, who doesn't live there, who just happened to be visiting her dad on the same days Becky was there. Only God can do that!

2 comments:

Judy Jones said...

Randy,
I can give you information about specialists if you want. There is lots of information on our website also: clfoundation.org.

Judy (who has had 18 years dealing with this disease)

shwamm said...

this is conner george ha this is nice